Invitation To Talk With MPs For J Cox Loneliness Commisson
It is with great elation and gratitude to be invited by Scope Charity to attend Parliment next month as one of the Charities 3 disability story tellers for the vital Jo Cox Loneliness Commission .
The legacy of Jo Coxs kindness and human connection is one dear to my heart and I am grateful to Scope and our MPs for the chance to discuss how bet to include,safeguard and support the Autistic community young and old in an equal life experince free from isolation .
27 June 2017
Autism Women And Girls Module For National Autistic Society
Rachel Townson and Carly Jones at Scope HQ for NAS women and Girls filming April 2017
The issue of Autism awareness ,understandings and access to media for Women and girls is one that is naturally very close to my heart .
It was with great excitement to be able to participate in the National Autistic Societys first women and girls module filming which aims to explore how our traits can be percieved differently and discuss our collective experiences and hurdles .
01 May 2017
All Party Parlimentary Group For Autism House Of Commons
Huw Merriman MP chairs the APPGA at Parliament 18th April 2017
On Tuesday 18th April Huw Merriman MP ,Cheryl Gillian MP the National Autistic society and Ambitious about Autism held the APPGA evidence session on Education and Autism .
It was a pleasure to attend as Include me too Autism representative and hear about the fantastic progress happening in Parliament for our young Autistic children in the UK today .
International womens Day 2017 Scope Blog And UN Film Screening
UK India Year or Culture 2017 - We Care Film Festival India screening Women's and Disability films for International Women's day 2017
International Women's day is alway the perfect timing to promote an raise awareness of the safeguarding of emotional ,practical,and mental health andthe hurdles that still today are challenges for Autistic females both locally and globally .
It was with great honour that in UK India Year of culture 2017 my 2014 documentary following our families multiple female Autism diagnosis was Offically selected for the We Care Film festival in India screening women's films on International women's day .
Locally in London charity Scope shared my blog about the consequences and importance of timely autism diagnosis and the costs of late diagnosis ,I was later informed by Scope the blog is the most read blog of the year at Scope and I am still carving out time to be replying to the many emails to amazing women the blog reached , a huge thanks to Scope !
Thanks To the National British ipaper For publishing Sex Ed And Autism Article
A pleasure to author a vital article for a National Newspaper
To be the Author of an article for the National British Newpaper The IPaper was a real privilege.
Sex Education for all really MUST mean for ALL and with the vital news (don't be mislead by headline ) that Sex Ed is now compulsory it's the perfect time to have the lessons tweaked to be fully inclusive for Autistic students in mainstream,SEN or Home educational settings .
National Autistic Society Professionals Conference 7-8th March 2017
On international Women's day I was fortunate enough to be invited by the National Autistic Society to Co Chair the NAS Professional conference in Harrogate Yorkshire UK .
It was a real full circle moment of a personal level also as it was the first time I returned to Harrogate since one of my first large presentations on Autistic Females at the same conference in 2013 .
The change in our society's awareness ,understandings and approach to Autism and Females has been on a unprecedented level in the years since , it was a truly outstanding feeling to go back ,celebrate ,reflect and support .
10 March 2017
Submission to UK Parliament Mental Health And Schools Role Inquiry Accepted
PhD researcher Ruth Moyse ,CAMHS Clinical lead Mairi Evans and myself are relieved and encouraged to be notified that our recent submission raising concerns and practical soloutions to safeguarding the mental health of Autistic children in mainstream education has been accepted and published by the UK parliament committee .
Following the Queen opening the Cyber Security offices in London the CyberFirst Girls competition has been launched hoping to encourage ,excite and explain what Cyber security /legal hacking is to young bright women whilst participating in a four part online competition to prove their talents and skills .
Four academy Aspergers girls have been selected to participate and we are keen to start this following week.
Huge thanks to Clive Act of Livelywood Pictures for sponsoring the girls a top tech IT media suite to use for the duration of this exciting project .
24 February 2017
Advocacy Visit To Scotland On Behalf Of SWAN and Scottish Autism
Catriona Steward of SWAN and I working together on Scottish Autisms Right Click project
It was a delight to be invited to participate in the filming of Scottish Autisms Right Click Internet project for Autistic women and girls.
The project will consist of various interviews,resources and support from advocates ,interviewees and Psychologists such as Tony Attwood .
It was a honour to be able to participate, we know how timely the need for better understandings for women and girls are and I know Right Click is an inevitable success to move forward for our women and girls .
Thank you to Scottish Autism and SWAN from taking such great care of my daughters and I ,we had never been to Scotland so it was a real treat for us all ,Scotland was breathtakingly beautiful.
18 February 2017
Autism and girls Channel 4 News special
Talking on Channel 4 news Autism and girls
On Thursday 16th Febuary 2017 Channel 4 aired their Autism and girls special feature to which the feedback from hundreds of parents and women has been phenomenal .
Channel 4 featured Limpsfield Grange the ONLY state run autistic girls school in the UK which is headed by Sarah Wilde .
Carrie Grant was live in the Channel 4 studio and advocated perfectly for Autistic girls .
I would like to personally thank Keme at Channel 4 News for his professionalism,autism awareness and for making this happen to change so many lives .
On Tuesday 17th January The National Autism Project held a reception event at the House of Lords for the launch of "The Autism Dividend " report requesting sounder research in Autism in the UK.
It was a pleasure to attend as Autism representatives of IM2 Charity on behalf of my good friend and fellow advocate Parmi Dheensa.
You can read more about this vital report using the above link.
Thanks to Radio Free UK for sharing this audio article covering the UN Geneva Trip of October 2016 raising awareness of Autistic females .
14 January 2017
Women and Equalities Committee Goal 5 Meeting Jan 11th 2017
Dr Helen Mott gives evidence at committee
The Women and Equalities Committee held an evidence meeting at Portcullis House Westminster on Wednesday 11th Jan 2017 to discuss the implementation of United Nations Sustainable Developmental Goal 5 in the UK .
Dr Helen Mott spoke about the groups left behind in the UK and included the needs of disabled women and girls .
A short film made for Autism Berkshire , Bracknell Forest Council and Thanes Valley Police UK featuring 2 Autistic adults sharing their experiences with local Police in the UK . What are common misunderstandings ? What could be improved to help both the the Police and Autistic community?
04 January 2017
Womens Equality Commitee accept Autism and Females Written Submission Towards the Inquiry Into Goal 5 Implementation In The UK
It is with elation and great encouragement that I today learned that the written submission submitted to the UK Womens Equality Committees Inquiry of Goal 5 implementation has been accepted .
The main point raised being,
*The Clinical Misogyny towards Autistic females in the UK why we require equal access to diagnosis and the models of British clinical excellence to replicate nationally. (1)
* How the Standard Of Living for Autistic Women and Girls in the UK standard is not reflective of living in a developed country. -Why the 2030 Goals are Important. (2)
*How the Department of Health and Education Must Communicate and Work Together in Order to offer Autistic Women and Girls Equality in Education, Sexual /Reproductive Health and Safeguarding.(3)
*How the Autism Act 2009 Must Add Autistic Women and Girls as a Policy Priority by 2019(4)
* The Challenges of Measuring Autistic Women and Girls Progress, the Effect this has on Autistic Women and Girls Being Neglected in Policy , The Hidden Cost of Unsupported Autism and How To Combat this .(5)
All Party Parlimentary Advisory Group for Autism Take Action To Safeguard Autistic Lives
Autistica UK reported that Autistic people are 9 times more likely to take their own life - APPAGA are taking this very seriously
In February 2016 I was invited by the National Autistic Society to present a talk to the London Samaritains about Autism to better aid their work for Autistic callers.
I decided it was appropriate to dedicate the talk to Matthew Percy , an autism advocate and keen young politician who sadly lost his own life at an Ipswich Train Station less than 12 months before the presentation.
We know thanks to Autistica UK research that the Autistic community are 9 times more likely to take own life , sadly ,through my own informal survey of 44 anonymous Autistic adults , I was told that 73% of Autistic adults feel unable to use the phone to make a voice call in a time of crisis .
Helplines answer a phone call in 3 rings .
A text or email is responded to in 4-12 hours.
Car parks /Train stations only issue a phone number , text and email contact is not so keenly advertised .
This information ,as with most of my talks goes online as a free resource after presentation.
Important findings are also shared with the experts .
It is with thanks to one such expert , Ann Memmott vice chair of APPAGA at Parliament, who ensured that this week the information so desperately needed is now on the hands of those at a level to make meaningful changes in the UK .
A apt dedication to Matthew Percy .
A throughly timely opportunity to save Autistic lives for 2017 and beyond .
09 December 2016
International Day Against Violence Against Women article For Scope
Domestic violence and disability -we need to do better
On Sunday 30th October the new ,free online course aired .
I created "Boundaries,Bodies ,Abuse and Reporting it for Autistic girls " with Open Learning website in order to help start to fill a much needed gap in health and safeguarding education for those on the Autistic spectrum and Home educated - the course however is open and welcome to anyone who feels they or a loved one may benefit from taking part.
I hope that is will be the first of many online courses for Teachers,Health professionals and more .
All courses aimed at young people / Autistic community will be free of charge .
Carly X
31 October 2016
United nations Oct 2016
Extract from Live Facebook streaming of UN talks
On Oct 3rd and 4th 2016 myself and daughter travelled to Geneva to speak at the United Nations social forum .The forum was to celebrate the 10 year anniversary of the ratification of the CRPD and theme therefore being the inclusion of people with disabilities .
We took with us research on those left out and overlooked in Autism such as females ,BAME community ,Genderfluidity ,and the safeguarding of Autistic lives with better help required accessing helpings and education,in particular sexual health and abuse safeguarding .
The trip was a great success making connections globally ,being able to share the expertise of clinical services in the UK worldwide and being offered to help raise awareness of Autism and girls both locally and as far as China .
We met up and worked alongside Include me too charity who also had a fruitful experience and shared world class knowledge in talks at the General assembly .
